Friday, August 22, 2008
Friday 22nd
Last night was pretty rough, Mike went to the pharmacy at 8:30 to fill my ani-nausea prescription (prochlorperazine). After reading the possible side effects ie:dizziness, heat stroke, vision changes, sore throat, inability to move eyes, muscle spasms... the list goes on. So I decided to get tough and do without. I have them as a back up in case I get violently ill. Anyway I am heading off to my 5th infusion, the walk down the hallway and trip up the elevator to the cancer center, seems to get longer and longer. Or maybe I am dragging my feet a little.
Wednesday, August 20, 2008
Big Surprise
So today was the best day yet. I called ahead of time to let the cancer center know I was coming. They had my "cocktail" ready when I got there, so the waiting time was minimal. I asked the nurse if they would up the saline so she put it on a 50/50 mix. My oncologist came by and gave me a prescription for anti nausea medicine. I told him I didn't need it. I have not had much nausea. He said with a grin, you will....I am not sure what that meant.Anyway I was home in 3 1/2 hours. I only had the cold chills for about and hour or so and the headaches have subsided. So all in all it worked out pretty good today.
I had a special surprise this evening. Joyce and Paulette came by, it was so good to see them both! Which would have been a great surprise in itself, but they also brought by frozen gourmet meals. Thank You So MUCH!
I miss you all.
Day 3

Well I suppose I really shouldn't say day 3, because I have only had two treatments and am heading off for #3. Oh..... I really do not look forward to going. It seems like the only time I feel half way normal is the morning, so I try to get as much done as I can then. With my appointments at the cancer center in the morning I have to get up really early in able to get anything accomplished.
I felt sorry for Mike yesterday, having to listen to me whine. Erin, when I start humming the tune of "99 bottles of beer" I'll know I have gone over the edge:-)
Thanks to everyone for the comments you have posted you make me smile.
OK.... here ...we...go......
Monday, August 18, 2008
One down....? to go.
Well day one is over, 1 down ? more to go. I arrived at the cancer center at about 8:00. Everyone was very nice,
and answered most of my questions
. The day was long, I was there for about 4 and 1/2 hours. The port was pretty neat to use. The only draw back was after the hepron was administered my chest has felt like there is a needle still in it. (
All in all the experience was not as bad as It could have been. Like I said everyone was very kind and helpful. This is a picture of my "crazy nurse Kathy"
As I left the hospital, I was a bit disoriented or maybe it was my direction being challenged again, :-) Anyway I got out to the car and it started to hit. Mind you it was 90 degrees today but I still needed to turn the heater on. That felt so good to be warm. I drove home OK and felt good as long as I remained in a 100 degree car, as soon as I got out of the car, I started shaking pretty violently. So I donned my sweats and settled in on the sofa with my warm blanket. Boy they weren't kidding when they said flu like symptoms. I am not sure if the body aches are left over from the surgeries or the "flu like" symptoms.
Well it is around 8:30 and I am feeling a bit better. So maybe I can finally get a good night sleep. 1 down......?... to go.
and answered most of my questions
All in all the experience was not as bad as It could have been. Like I said everyone was very kind and helpful. This is a picture of my "crazy nurse Kathy"
Well it is around 8:30 and I am feeling a bit better. So maybe I can finally get a good night sleep. 1 down......?... to go.
Day #1
Tuesday, August 12, 2008
CT Results

So today we went to the urologist to see what the results of my CT scan was. My kidney has reduced in size, which is good. He filled us in on the options I have. First I will need to replace the temporary stent every 3 months until my interferon therapy is complete. After that he can either do an evasive surgery, and go through my back to repair the ureter, this would mean a long stay in the hospital. Or we could go to Johns Hopkins Medical Center and have the a similar surgery using lasers. Well the choice is obvious. But we won't worry about that decision until next year.
In the mean time, I am concentrating on prepping for next Monday, and keeping positive.
Sunday, August 10, 2008
Mike and I decided to go for a drive yesterday, we figured this might be the last time we get out for a while. So we packed a bag and headed up north. We ended up in the Poconos. It was very beautiful, but I have to admit I was a bit disappointed. (After living in the Rockies, everything else seems small
We felt like "bad luck" was following us. It rained all the way up and all the way back. We did get a chance between rain storms to get a few pictures..)
As we drove home I noticed how beautiful the clouds were after the rain storms cleared. I couldn't help but think that is how life is. After we survive the storms placed before us, we notice the beauty of life.
My neck and chest were still aching so we cut the trip short.
The weekend did not turn out the way we had hoped,
but we felt lucky to be able to spend time together laughing and enjoying the beauty all around us.
Thursday, August 7, 2008
power port

My surgery is over. Whew.. I don't think it gets any easier. OUCH!!!
I have a huge bandage over the upper left side of my chest. My neck is pretty bruised. Needless to say last night was a long.......long night.
On the up side I am now a power port recipient.
When they discharged me from the hospital, they gave me a package with information for any medical personnel I encounter. This is a new technology, I also have a card for traveling purposes a bracelet and key ring so I guess you could call me, " a card caring POWER PORT PERSON" . hah say that fast 3 times.
Today I have a CT scan scheduled and I hope I can make it. Tom and Grace are taking me to my appointment . I don't know what I would do without them. The medication I am on is making me feel pretty nauseous. I hope I can choke down the barium....ick
Wish me luck!
Wednesday, August 6, 2008
one step at a time.....
Monday, August 4, 2008
Happy Birthday Krystal!
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