I am still updating my blog, even though I have blocked it for a short while. There are some people from where I used to work that I do not want them to have any information about me. They would somehow twist my information to suit their agenda. So for now I do apologize.
Today I am trying to think of all I need to do to prepare myself once again for surgery. I get to go on the clear liquid diet again, and emotionally prep myself for this go around.
Tomorrow my surgery is scheduled for 7:30 we need to arrive at the hospital at 5:30 am so I think we will have to leave at 3:00am. Mikes Mom and Dad are coming tonight, they will be bringing Mike dinner and spend the night. Mikes Mom will go to the hospital with us, I am so glad she will be there for Mike. And his Dad is staying at the house to watch the dog. I don't know what I did to get a Mom and Dad as awesome as they are. I am speechless and feel so humbled from the love they have shown us.
My own parents don't ever call or even seem concerned about my health. But my parents told me years ago they put conditions on their love. I am just so thankful to finally know what it feels like to have a Mom and Dad that cares. I really hit the jackpot when I met Mike, not only did I get an awesome husband, but a wonderful Mom and Dad too! So with their support, I feel like I am in good hands.
Wednesday, December 16, 2009
Another Surgery
I received a call from the Oncology Surgeon at Johns Hopkins Monday. She told me they would like me to have the surgery Friday. She will remove the mass inside the pelvic girdle then remove all of the lymph nodes in the groin area (inguinal node dissection) Then since the primary site had no additional treatment she will be removing all of the lymph nodes under my arm (Axillary lymph node dissection). Also since the kidney surgery was done so recent there will need to be another stent. So my whole right side will be stitched up.
This was stressful enough, with Christmas preparations that need to be done before the surgery. But to throw another log on the fire, I was notified from the pharmacy that the insurance was denied. After looking into what caused the glitch, I found out that my employer canceled my insurance and put me on COBRA without saying a word to me. Well to make a long story short after 2 days of phone calls, tears and worrying, I think we are back on track. I am so thankful the pharmacy let me know otherwise I can't imagine what would have happened. The part that I think made me the most angry with the whole thing was I have been sending my employer the premiums for the last 3 months and technically I am still employed. I think that what they did broke quite a few laws.
Well at least now all I have to worry about is the surgery. I do have to say I think this is the surgery I am most worried about. This one is going to be rough....did I already say that? Well I see that I am rambling... So we will be heading out Friday morning at 3:30 am, we need to arrive at the hospital 5:30am and the surgery is scheduled for 7:30am. The surgeon says it should take 6 or 7 hours to remove the mass but with the dissections I am not sure how long I will be on the table this time.
It will be a hard day for Mike and he has been sick this week, I think I worry about him more than me. Say a prayer for Mike and myself.
This was stressful enough, with Christmas preparations that need to be done before the surgery. But to throw another log on the fire, I was notified from the pharmacy that the insurance was denied. After looking into what caused the glitch, I found out that my employer canceled my insurance and put me on COBRA without saying a word to me. Well to make a long story short after 2 days of phone calls, tears and worrying, I think we are back on track. I am so thankful the pharmacy let me know otherwise I can't imagine what would have happened. The part that I think made me the most angry with the whole thing was I have been sending my employer the premiums for the last 3 months and technically I am still employed. I think that what they did broke quite a few laws.
Well at least now all I have to worry about is the surgery. I do have to say I think this is the surgery I am most worried about. This one is going to be rough....did I already say that? Well I see that I am rambling... So we will be heading out Friday morning at 3:30 am, we need to arrive at the hospital 5:30am and the surgery is scheduled for 7:30am. The surgeon says it should take 6 or 7 hours to remove the mass but with the dissections I am not sure how long I will be on the table this time.
It will be a hard day for Mike and he has been sick this week, I think I worry about him more than me. Say a prayer for Mike and myself.
Thursday, December 3, 2009
Still holding.....
Well not too much has happened since the last post. I have had quite a few tests and it seems that each test that is done opens a door for a new test. I met with my new team of Oncologists today, (well there are 2 ). They sent me to Hopkins for one more test and gave me 3 scenarios of what might be the next course of action, pending the results of the 3 tests that were done today and the consult needed with the surgeon. So here I am sighing and wising I would know what is in store. Maybe I should savor this time of not knowing, it could be a blessing in disguise.
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