120th over....

I am sorry I haven't posted for such a long time.

It has been pretty stressful this week. Sometimes I think stress is more difficult to deal with than the side effects. I am getting used to the side effects, (they still are there, but are getting manageable). Or maybe I have had them for so long it is beginning to feel "normal". I just wished Mike would be able to find a job, I know we both would be able to smile a little more often.



But other than that, things are moving along. We have such wonderful supportive friends and family. Thank you all for your prayers and kind wishes.



Life is good!

Another Surgery Thursday....... 117 over

Well I had yet another surgery, the health care people were joking with me I could do the surgery myself and not need them. Everything went pretty good this time around. Maybe I am building up a tolerance. I am so glad I didn't have any complications like the last time. My port incisions are still pretty sore, but I feel like I am on the mend.

Down to 9 weeks of treatment....I am so optimistic about the end finally coming. I think I am going to try a new approach to my injections, I am going to try to start giving my injections at work so the side effects can hit me and hopefully be over by noon the following day. As soon as I get it figured out I will be done. (what a good thought) Anyway. I will let you know how the work injections go. Hopefully there wont be a high fever until I get home.

So today is Fathers Day, and I want to say Happy Fathers Day to all you Dads!

I cannot help but think of our Father in Heaven, and all he does for us and how we should be grateful for all he does for us. Thank You !

114th injection over

Wow, what a week. I am not going to tell you it was awful...but I can honestly say it was not good. Being home bound is bad enough but with all the rain and stormy weather we have had, I think I could easily sink into a depression. On a happier note I am feeling much better just some bruising and of course the stitches and bandages left. I will be going to see my oncologist and surgeon on Monday and hopefully will get a release to return to work. Of course Tuesday is a side effect day so I won't be able to go in until Wednesday.
Thursday I have another stent removal and replacement so back to the hospital I go (I still think they should give you something like frequent flyer discounts). The recover time on this one should be minimal. (hopefully)
I gave myself my injection early today, figured I would try to get over the side effects early.
And the weatherman actually says we might see some sunshine soon...I will believe it when I see it. Another word for weatherman.....liar. Just kidding

So I am now officially down to 10 weeks of injections left. And it cannot come soon enough.

114 down ....... 30 to go

111 done..back among the living.....i think

The surgery went OK. I am still really sore. The last few days were horrible. I think it was much harder, with my cancer treatments on top of a surgery. I did not even think about that. I was not even sure what day it was or where I was.

But on the positive side I am thinking a bit more clearly and the swelling is going down. I had to give myself an injection when I came home from the hospital and then again last night. The side effects are still there, but one good thing about pain I have been experiencing is I can stop focusing on my cancer treatment side effects.

See there is always a silver lining.

111 done.................33 to go

Just waiting to go to the hospital.....Time is not my friend today.

Here we go again........... 109th

Here we go again......

This morning we went for blood work, then off to see my surgeon. She wants to get this port out asap. I still have some of the contrast trapped in and leaking out to who knows where. So I have surgery scheduled for Wednesday. The surgical nurse will call tomorrow and set up my time. I have been running a low grade fever since Friday. It is hard to know if it is side effects or a possible infection. As I was waiting for the surgeons scheduler I received a call from my urologists scheduler, wanting to schedule my stent surgery for the 18th ...arrghhh.. this is feeling like last years surgery schedule.

After that we swung by the oncologist to let him know what was happening. And then I am looking forward to my injection this afternoon.

So that is all I know except my neck and port site is killing me and very swollen. Ouch.. :-(

Radiology..................108th

So here I am today....... not ANY fun. I had a routine flush appointment at the Cancer Center. As they were injecting the saline, it hurt like hundreds of needles being stuck into my neck. They sent me down to Radiology... again. To make a long story short, I have a crack in the tube in my port that feeds into the Carotid Artery. They called and got me an appointment with my surgeon for Monday. Then get my bloodwork done at a different lab, since I could not get the labs done.

Back at the Cancer Center they were not able to flush out the contrast so they told me to pay attention to any unusual symptoms.

I am home now and just gave myself another injection. So once again another icky weekend.

Time keeps marching on.......107th complete

Time keeps marching on................
Very Slowly.

It seems like the more injections that I finish, the harder this is becoming. The muscle and joint pain has been very bad, I can handle the fever, headaches and fatigue. But the joint pain has been something I have not been able to accept. I think the hardest part is, most time the pain is so bad I cannot sleep. So it just seems like a vicious cycle with the pain and fatigue. I am so looking forward to someday getting a few hours of uninterrupted sleep without waking up in pain
So today I will continue on my Interferon Journey.
Hopefully the end will come soon.

37 injections left.....

Memorial Day 2009 ....REMEMBER

Memorial Day has become a day of picnics, parades and of course we cannot forget the day off from work "the unofficial" start of Summertime fun.

But I think we have forgotten the real reason this is a holiday. So below is my tribute to all those who have given so much, so we might enjoy the picnics, parades and the day off.

Please take a moment and reflect on this somber day.

3rd stanza of American the Beautiful:

O beautiful, for heroes proved

In liberating strife,

Who more than self their country loved

And mercy more than life!

America! America!

May God thy gold refine,

‘Til all success be nobleness, and ev’ry gain divine!

Memorial Day

PoemKelly Strong

I watched the flag pass by one day,

It fluttered in the breeze.

A young Marine saluted it,

And then he stood at ease..

I looked at him in uniform,

So young, so tall, so proud,

With hair cut square and eyes alert,

He'd stand out in any crowd.

I thought how many men like him

Had fallen through the years.

How many died on foreign soil

How many mothers’ tears?

How many pilots’ planes shot down?

How many died at sea

How many foxholes were soldiers’ graves?

No, freedom isn’t free.

I heard the sound of Taps one night,

When everything was still,

I listened to the bugler play

And felt a sudden chill.

I wondered just how many times

That Taps had meant “Amen,”

When a flag had draped a coffin.

Of a brother or a friend.

I thought of all the children,

Of the mothers and the wives,

Of fathers, sons and husbands

With interrupted lives.

I thought about a graveyard

At the bottom of the sea

Of unmarked graves in Arlington.

No, feedom isn’t free.

THANKYOU

102 last post .... for awhile

I think this is going to be my last post for awhile. I do not get any comments on my posts so I feel like this is probably a waste of time. I will occasionally check back and post once in a while. Thank you for those that have supported me.

Lynette