Here we go....again

Quite a bit has happened since my last post. So here is the abbreviated version:

We had the additional tests done, waited for results, then back to the surgeons office, she sent us to the hospital for a biopsy. The radiologist would not do it. She said it was too invasive. So she consulted with my surgeon. After waiting another weekend to speak with someone, my surgeon called me and said it would be better if I went to someone who specializes in this type of surgery.

So I have an appointment to see a Melanoma surgeon at Johns Hopkins. I feel better that I will be going to someone

who actually specializes in my cancer.

Anyway we are off to Baltimore this morning, I am a bit nervous since the Oncologist and Surgeon told me they did not know of anyone in Delaware that could do this surgery. I am not sure what that means, but I translate it to "OUCH".

I am really getting tired of all this, and wished I could get back to some sort of normalcy.

Here we go again!

More Tests

Mike and I went to the Surgeons office on Thursday. She was very informative, before she schedules a surgery she wanted to do another test to make sure we are not dealing with a reading that might be compromised. So I had my test yesterday and will see the surgeon again next Monday for the results. So we are in the waiting mode.
Thursday we go to Philadelphia for another appointment with my Urologist, hopefully all will go well.
So thats about all that is going on in my life.

Trust in the Lord with all your heart; do not depend on your own understanding. Seek his will in all you do, and he will show you which path to take.
Proverbs 3:5-6

Here we go again

I am not sure how to begin this post....but you know me to my credit or demise I am brutally blunt. So here goes:
Mike and I received some pretty disturbing news yesterday. My PET scan results showed there is another lymph node mass "most likely reoccurent melanoma" there was also something about the muscle being targeted. So my Oncologist made an appointment with my Surgeon for next Thursday, she might not be able to handle this type of surgery. My Oncologist said they may need to refer me to Johns Hopkins or a cancer specialist in one of the many hospitals in Philadelphia. I am hoping and praying we can do this locally, these trips to Philadelphia and Baltimore are brutal (especially coming home from my last surgery).

Right now we are trying not to worry to much and know what ever the outcome will be is in Gods hands.
We ask for your prayers.

Pet Scan

This morning I had my PET/CT Scan. It was really hard to lie there for 45 minutes without moving, with the discomfort of the incisions, but I made it...whew. All in all the appointment took almost 3 hours. Now its a waiting game until I get the results back. We probably will not know the results until early next week. (at least thats what the radiologist said).

It has been quite some time since I last posted. The surgery was much longer than expected, Mike tells me I was on the table for 9.5 hours. All I remember is looking at the clock before they put me out, it was 6:00 am and when I was able to focus on the clock again it was 6:30 pm. The only thing positive I can say about this last experience is , it's over. Wow, I knew it was bad but never expected this. I am so sore all over, even the roof of my mouth is bruised. But I am on the uphill swing, I can feel myself feeling stronger each day. I think the recuperation time would have been easier if I was not coming out of a year of cancer treatment, and my immune system is so hammered. We knew it would take longer than the typical case before I went into this.

I needed to postpone my PET/CT scan this week, so they rescheduled it for next week, I am positive it will come back clear. I will need to keep my life stress free in order to stay cancer free. I am so looking forward to getting some normalcy back into my life.

Can you tell we are getting a bit nervous?

Yup.. beneath the cool exterior lurks a quivering scaredy cat....

You would think I would be getting used to this but I think each time it gets harder to go under the knife. We saved the worst surgery for last. (well next to last).

Trying not to think too much about tomorrow. And trying to remember all I need to take to the hospital and things that need to get done here, before the fun begins, is defiantly not my idea of relaxation.

Ohmmmmmmm chanting is not helping either.

I cannot believe it has been 2 weeks since I last posted. It has been a long 2 weeks. We went to Philadelphia to see the surgeon and get scheduled for my surgery (pyloplasty). The surgery should last around 8 hours, and I will be hospitalized for 3 to 5 days. So woo hoo another great adventure for Mike and I. I think it is easier to be the one going under the knife rather than the one having to wait in the waiting room. I get to sleep through the whole thing. The fun will begin on tuesday with the pre-op prep, then off to Philadelphia on Wednesday.

So here is the positive side, with Gods protection this will be the last surgery, and I can be on my way to starting to feel strong and healthy. It has been so long since I have felt healthy, I can only faintly remember.

Here are some of the things I am looking forward to:



Eat a good meal without nausea,




Be able to stand without back pain,










Exercise,









Go for walks,







But Most of All LAUGH

Oncologist

Yesterday we went to see the oncologist. I had quite a few questions, on the maintenance of my Cancer. He did say it will take 3 to 6 months for all the side effects from the treatment to subside. They are scheduling me for a PET scan, I am not sure when that will be, but I do not want to celebrate too much until I get a clean scan. I was very happy to think I don't need to go to the Oncologist for 3 months.

So its the weekend! Raining and a good day!!!

I am a SURVIVOR!!

Last Day!!!!

Today has finally come. I sometimes thought I might never make it through the treatment. But woo hoo it is over. I have another surgery this morning, (stent removal) I am so looking forward to being able to walk again without pain. Maybe now I can focus on getting some muscle tone back. (Before my big surgery in Philadelphia) . I am not sure when that will be so right now I am savoring the completion of my treatment. I still have one more injection this afternoon. And then I will ask you all to say a prayer of thanks.

Off to the hospital!

142 over.......2 more

Did I ever think this week would get here?

It has been the longest year of our lives, I sometimes think of how much worse this cancer could have been. People with stage 4 Melanoma usually don't make it. I have been so blessed, I know I have had a miracle and a whole legion of Angles in my corner. God has been so kind to us. I have so many people that have given me such support and encouragement, without all of you this journey would have been so much more difficult.
So to my God, Thank you! To my husband Mike, thank you! To my family, thank you! To my neighbors, thank you! To my friends and co-workers, thank you! To my Cancer com padres Marsha/Jackie and Chris. All of my doctors, surgeons, oncology nurses, thank you!


I hate naming names because you always miss people and I can't be held accountable, I am still suffering the side effects of the Cancer drug. But you know who you are and my heart is so full of Love and gratitude! Your prayers and encouragement have meant more to me than you know.


The end of this journey is almost here. 142 down ....2 to go